The latest news from debra of America, from organizational happenings and inspiring stories to expert insights and research updates.
News & Blog
10 TEAM DEBRA Runners Cross the Finish Line at the Chicago Marathon
On October 8, 2023, ten dedicated TEAM DEBRA runners conquered the grueling 26.2-mile course at the iconic Bank of America Chicago Marathon!
In the many months leading up to race day, our team trained hard, while raising an amazing $15K and counting, in support of those living with Epidermolysis…
EB Community Member, Analise Cardullo, to be honored with Spirit Award
On Saturday, November 4, 2023, Analise Cardullo will be honored with the Spirit Award at the debra of America Annual Benefit at Georgia Aquarium in Atlanta, GA. Get your tickets here!
The debra of America Spirit Award recipient is a person with Epidermolysis Bullosa (EB) in the United States who…
EB Community Member, Susan Craighead, to be honored with Spirit Award
In Loving Memory of Susan Craighead (1964-2023)
On Saturday, November 4, 2023, Susan Craighead will be honored with the Spirit Award at the debra of America Annual Benefit at Georgia Aquarium in Atlanta, GA. RSVP here!
The debra of America Spirit Award recipient is a person with Epidermolysis…
debra of America Launches Registry for Individuals and Families Diagnosed with "The Worst Disease You've Never Heard Of" Epidermolysis Bullosa
debra also announces a new partnership with public relations and creative agency Fearey to raise awareness for Epidermolysis Bullosa and all those who are affected
NEW YORK, Oct. 4, 2023 /PRNewswire/ -- debra of America, the leading patient advocacy organization dedicated to improving the quality…
Dr. M. Peter Marinkovich honored with Jouni Uitto Impact Award
On Saturday, November 4, 2023, Dr. M. Peter Marinkovich of Stanford University will be honored as the inaugural recipient of the Jouni Uitto Impact Award at the debra of America Annual Benefit at the stunning Georgia Aquarium in Atlanta, GA. Grab your tickets here!
Dr. Marinkovich is Director of…
New Financial Assistance Program for EB Patients and Families
In partnership with debra of America, The Assistance Fund (TAF) has launched a financial assistance program that will help patients and families affected by Epidermolysis Bullosa (EB).
The Epidermolysis Bullosa Financial Assistance Program provides financial assistance for out-of-pocket costs…
In Memory of Arlene Pessar, debra of America's Founder
Arlene Pessar and Eric LopezIt is with a heavy heart that we announce the passing of debra of America’s Founder, Arlene Pessar. We extend our deepest condolences to the family and friends of Arlene, who sadly passed away on September 15, 2023.
Arlene, alongside her son Eric Lopez, who was born…
