Other Resources

Take advantage of a variety of organizations that provide low or no-cost medical travel and housing assistance.

Help your child with EB approach doctor visits with confidence with our customizable Social Story, designed to help them feel more comfortable and prepared for doctor visits and EB Clinic.

Find helpful resources to assist you and your child in the transition from home to primary or secondary school. You'll also find tips for young adults entering college. 

Camp is where kids get to be kids, and where friends are made for a lifetime. Check out our list of EB-friendly camps. 

Our informational EB Cards quickly and conveniently explain what EB is and how it affects you or your child. Request a free set of 30 or print them from home!

Our Hospital Care Tips help ensure that proper EB care protocol is followed during your visit to the hospital or doctor's office.

We've compiled a list of organizations to support you and your loved ones through the grieving process.

Check out our list of wound care supply companies that have a specialty in serving those with EB.