Going to medical appointments can be challenging for children with Epidermolysis Bullosa (EB). To help make these visits easier, debra of America is proud to offer a customizable social story designed to support children with EB in preparing for doctor visits and EB Clinic appointments.
What is a Social Story?
A social story is a simple, supportive tool designed to help children understand and navigate unfamiliar situations. Through short, clear sentences and comforting visuals, social stories break down the steps of an experience—like going to the doctor—so children feel more comfortable and prepared. For children with EB (Epidermolysis Bullosa), doctor visits can sometimes feel overwhelming. This social story aims to explain what to expect during an EB doctor's visit in a way that feels reassuring and manageable.
This EB Social Story was written by Laura Dellicker, MSW, LCSW for her son and generously shared with the EB Community, providing a comforting and educational guide to common medical visits for children with EB.
Customize, Print, and Prepare
PRINT-AT-HOME: Each page of this social story focuses on a different medical specialty. You can select & print the individual pages you need based on your child's upcoming appointments. View Now >
ORDER A PRINTED COPY: If you’d prefer to receive a printed copy, simply request one below. We’ll mail it to you free of charge.
PERSONALIZE WITH YOUR CHILD: Fill in the details for each appointment, such as the doctor’s name, location, and what to expect. Have some crayons handy for your child to participate!
Explore the Available Topics:
- EB Clinic
- Doctor’s Office
- Dermatology
- DEXA Scan
- Eye Doctor – Ophthalmology
- GI (Gastroenterology)
- Heart Test – Echo
- Heart Test – EKG
- Heart – Cardiology
- Hematology
- Neurology
- Nutrition
- Occupational Therapy
- Orthopedics – Feet
- Orthopedics – Hands
- Pain & Itch Doctor
- Palliative Care
- Physical Therapy
- Psychiatry
- Psychology
- My Doctor’s Visit (FILLABLE TEMPLATE)
- More Coloring Fun
- Acknowledgement Page
Request Printed Copy
Acknowledgement
Special thanks to Laura Dellicker, MSW, LCSW, for creating this social story to support children with EB in navigating doctor visits and EB clinic appointments
