People who have Epidermolysis Bullosa, or a child with EB, know all too well the challenges of finding a health care provider who truly understands their condition.
As a service to families affected by EB, we've compiled a list of dermatologists and other practitioners across the United States who have experience treating EB patients.
The directory includes specialists recognized for their expertise in EB as well as practitioners recommended by fellow EB community members. Because the size, services, and experience with specific EB types can vary greatly, please submit your request so that we can offer personalized support and connect you with the best providers based on your unique needs.
Please complete our Participant Request Form below and we will respond shortly. For additional questions, email programs@debra.org or call 833-DEBRAUS (833-332-7287), ext. 104.
Help Expand the EB Doctor Directory
For Practitioners: If you would like to be listed in this directory or update your listing, please submit your information by completing the form below.
Community Member Referrals: We are eager to hear from all community members about their experience with practitioners they have sought care from. Please share with us the names of doctors you would recommend to others with EB by completing the form below.
Thank you for being part of this POWERFUL Community Network!
