Join debra

Let's cure the worst disease you've never heard of —before it's too late.

Please Donate Now. 

Thousands of children with Epidermolysis Bullosa (EB) are relying on you.

Let's cure the worst disease you've never heard of —before it's too late.

Please Donate Now. 

Thousands of children with Epidermolysis Bullosa (EB) are relying on you.

This holiday season, children with EB will face levels of pain you can't imagine.

Specialized non-stick bandages that cover and protect their open wounds cost about $84,000 a month, or nearly $1 million a year. Your gift helps ease their pain by providing free bandages through debra, making their holidays a little brighter.

holiday decor
holiday decor

 

Why is EB "The Worst Disease You've Never Heard Of"?

Epidermolysis Bullosa (EB) is a a rare genetic disorder that doesn't allow the skin to bind together, causing painful wounds from even the slightest friction or touch. 

EB is fragile skin that tears, open wounds that never heal, and cancer that takes them way too early.

EB is your child in pain all the time. 

Imagine their heart-wrenching screams of pain, pleading for you to stop during something as routine as a bath.

debra of America is at the forefront of the fight against this devastating condition, providing vital support and hope to thousands of families across the United States.

Your support is more than a donation —it's a lifeline.

With your support, debra of America provides free programs and services that ease the unrelenting physical, emotional, and financial burdens of EB and funds innovative research for treatments and a cure.

Charity Navigator, the nation's leading charity evaluator, consistently ranks debra in the top 10% of all charities nationwide, awarding us a 4-star rating every year. This reflects our commitment to being good stewards of your donation.

infant with epidermolysis bullosa $10

Provides a newborn with EB-friendly reusable soft cloth diapers that cause less wounds than the typical store-bought diaper.  

Please consider a monthly donation to help more than one child. 

DONATE Epidermolysis Bullosa Cure Join debra $25

Gifts a baby with a Medela Special Needs Feeder. The bottle's specialized nipple decreases sucking, preventing friction and limiting painful mouth sores. This ensures babies with EB receive the vital nutrition they need, which is significantly higher than that of a typical baby.

Please consider a monthly donation to help more than one child. 

DONATE wound care supplies $50

Provides two EB families with a box of essential wound care supplies and crucial information through our New Family Advocate or Wound Care Distribution Programs.

Please consider a monthly donation to help more families in need. 

DONATE Epidermolysis Bullosa Research Research Fund

Support ongoing research initiatives aimed at developing new treatments for all symptoms and a systemic cure.

Research is expensive but every dollar helps. Please consider a recurring monthly donation to accelerate the science.

DONATE

Our Impact

We offer families immediate relief, provide essential education, and bring hope when there is nowhere else to turn. From crucial wound care supplies to access to an on-call nurse, we are a lifeline to thousands of families nationwide.

Some families are facing medical supply bills of $80,000 per month. We do everything possible to alleviate this burden and spend more than $1.5 million dollars on direct-to-patient programs and services every year.

Because this is the worst disease you’ve never heard of, we partner closely with academic researchers, elected officials on Capitol Hill, the U.S. FDA, and the drug development industry to drive meaningful change for the patient community.

LEARN MORE

Get to know the incredible people who make up our Epidermolysis Bullosa (EB) Community.

Caroline Georgia Baby Epidermolysis Bullosa

Caroline Georgia

"Caroline at 2 months would now develop breathing difficulties and we would receive her subtypes which is severe junctional EB. From that point onward, her fight would start and so would my endless search to find a way to save her, knowing there is no cure… a mother can and will move mountains for their kids."

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Sarah Oliviera

Sarah Oliveira

"A couple of years ago, she took a turn for the worse and the brutal effects of EB started to ravage her little body...She is on several pain medications, including Methadone, but they barely take the edge off the pain...It’s hard to not take EB personal, to not see it as a monster that has relentlessly taken a firm grip on your innocent child."

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Chance Walker

Chance Walker

"Travis took me to the NICU and he was laying there wrapped up in bandages and I was confused. I just started to cry because we could not hold him. We did not get to hold him until two weeks later. Can you imagine how we felt? Trying for 8 years and we could not hold him."

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