My daughter, Addie, was born with skin missing on her feet and had to spend two weeks in the NICU undergoing tests because we didn’t know what was wrong. She was eventually diagnosed with Recessive Dystrophic Epidermolysis Bullosa (RDEB).
She currently travels to Minnesota for doctor appointments, but it’s been a rough road for all of us involved. I can only imagine how she feels, but she always seems very happy and lighthearted.
Addie has trouble eating sometimes; we just have to eat slowly and not rush, or she’ll choke. She loves running, but almost every time she falls, something gets cut open.
I wish others knew that EB is something people struggle with every day, both internally and externally. I wish, instead of giving us strange looks when they see my daughter, they would just ask what’s going on. That way, we can spread more awareness.
Throughout our journey, debra of America has been a great help to us. They made it possible for us to attend the 2024 debra Care Conference in Georgia, and we receive boxes of supplies when needed. Their support has been there since the beginning.
- Katelynn, Mom to Addie
debra of America is proud to have supported Addie and her family through our Wound Care Distribution Program. Our Wound Care Distribution Program sends critical wound care supplies to thousands of families nationwide at zero cost to them. This essential program ensures that those with EB have access to the supplies they need to manage their condition, even when insurance falls short.
Join the fight against EB. Your tax-deductible donation ensures that no family faces the challenges of EB alone.
