EB Awareness Week Social Media Toolkit

Help spread the word about Epidermolysis Bullosa (EB) Awareness Week (October 25-31) with our Social Media Toolkit! Download ready-to-use graphics and suggested post copy to raise awareness and support for the EB Community.

  • Copy and paste our suggested social media posts (or develop your own!) and post to your social media pages.
  • Download and share our images and graphics.
  • Add our existing hashtags to your post copy for more visibility: #EBAwarenessWeek, #EBWeek, #WeFightEB, #EpidermolysisBullosa
  • Tag debra of America in your posts so your followers can learn more about EB and our work! 
  • Follow debra of America on social media and share our EB Awareness Week content on your social media pages. 

Suggested Facebook, Instagram, and LinkedIn Posts

Copy and paste the suggested posts below, or craft your own with similar messaging, and share them on your personal social media pages:

It’s #EBAwarenessWeek! Join me in raising awareness about #EpidermolysisBullosa, a group of rare disorders causing extremely fragile skin that blisters and tears with even the slightest friction. Learn more about EB and take action at debra.org/ebweek #EBweek #WeFightEB  

#EBAwarenessWeek is October 25-31! I’m supporting the thousands living with #EpidermolysisBullosa, a painful and often fatal disorder affecting about 1 in 20,000 births in the U.S. Learn more and get involved at debra.org/ebweek #EBweek #WeFightEB  

Approximately 200 children are born with #EpidermolysisBullosa every year in the United States. For #EBAwarenessWeek (Oct 25-31), I’m raising awareness about this rare group of disorders. Find out more and take action at debra.org/ebweek #EBweek #WeFightEB  

#EpidermolysisBullosa is a debilitating group of rare disorders caused by a mutation in one of 18 genes. Individuals with EB face the lifelong challenge of extremely fragile skin that blisters and tears from minor friction. Join me for #EBAwarenessWeek (October 25-31) to spread awareness and learn more at debra.org/ebweek #EBweek #WeFightEB  

Suggested Tweets

It’s #EBAwarenessWeek! Help raise awareness for #EpidermolysisBullosa, a rare disorder causing fragile skin that blisters easily. Learn more and take action at debra.org/ebweek. #EBweek #WeFightEB

#EBAwarenessWeek is Oct 25-31! I’m supporting the thousands living with #EpidermolysisBullosa, a painful and often fatal disorder affecting about 1 in 20,000 births in the US. Learn more at debra.org/ebweek  

~200 children are born with #EpidermolysisBullosa every year in the United States. Join me for #EBAwarenessWeek (Oct 25-31) as I spread awareness of this debilitating group of rare disorders. Learn more and take action at debra.org/ebweek #EBweek #WeFightEB  

#EpidermolysisBullosa is a group of painful & debilitating rare disorders caused by a mistake in one of the genes that makes the skin protein. Join me in spreading awareness in honor of #EBAwarenessWeek (Oct 25-31). Learn more at debra.org/ebweek #EBweek #WeFightEB

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