Epidermolysis Bullosa Awareness Week

National Epidermolysis Bullosa Awareness Week (Annually, October 25-31) is a time to increase awareness of EB, to promote the need for a cure, and to spur advocacy on behalf of the thousands of individuals and families living with EB in the United States.

First legislated by Ronald Reagan and the United States Congress in 1984, #EBweek is now recognized annually as October 25 through 31.

Read the official resolution, H.Res. 335 from the Congressional Record

Learn more about Epidermolysis Bullosa (EB)

Activities & Ideas

Spread the word on social media

Use the power of social media to help drive awareness and action among your followers! We’ve created a Social Media Toolkit to make it easy to spread the word.  

Access our Social Media Toolkit 

Share informational flyers

Share flyers within your community, work, school, supermarket, or place of worship. You can print copies to hand out in person or feel free to share them online via email or social media!

Download the Flyer

Host a Virtual Supporter Led Event or Online Fundraiser

Host a virtual run, cooking night, or happy hour! Or start an online fundraiser with our easy-to-use DIY fundraising platform. We’re here to help you every step of the way. 

Email Jason at jason@debra.org to get started.

Request an Official Proclamation

One way to engage your elected and public officials while also raising awareness is to obtain an EB Awareness Week Proclamation in your city or state. 

Learn more

Make a donation

Donations make a direct impact on the thousands of individuals who live with EB in the United States.

Make a donation 

History of EB Week

On October 11, 1984, President Ronald Reagan and the 98th Congress of the United States of America signed the Joint Resolution approving the week of November 25 through December 1, 1984, as the first-ever “National Epidermolysis Bullosa Awareness Week.”

On September 21, 2006 (U.S. Senate) and December 9, 2006 (House of Representatives) the 109th Congress of The United States of America declared that the last week of October annually will become “National Epidermolysis Bullosa Awareness Week”.

The bill declares that the annual dates between October 25-31: Supports the goals and ideals of National Epidermolysis Bullosa Awareness Week to raise public awareness and understanding of Epidermolysis Bullosa; Recognizes the need for a cure for the disease; and encourages the people of the United States and interested groups to support the week through appropriate ceremonies and activities to promote public awareness of Epidermolysis Bullosa and to foster understanding of the impact of the disease on patients and their families.

Related Resources

Epidermolysis Bullosa Awareness Week About EB

EB is a rare connective tissue disorder with many genetic & symptomatic variations. All forms share the prominent symptom of extremely fragile skin that blisters & tears with any friction. 

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Epidermolysis Bullosa Awareness Week Our Mission

“Because the cost of doing nothing is too great” is an axiom that defines our mission and directs all of debra of America’s actions as an organization. 

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Epidermolysis Bullosa Awareness Week Other ways to get involved

There are many ways that you can join the fight against EB. Start an event, host a fundraiser, volunteer, and more!  

Learn More