debra of America Staff: Jason Kelly, Darian McCoy, Aigerim Saparova-Smith, Jenna Kubeck, Jeanette Gissen, Mike Powers, Catherine Doernbrack, Heather Fullmer, Brett Kopelan

 

Epidermolysis Bullosa Support Staff

Brett Kopelan
Executive Director

Epidermolysis Bullosa Support Staff

Catherine Doernbrack MSN, RN, CPNP
EB Nurse Educator

Epidermolysis Bullosa Support Staff

Heather Fullmer
Community Engagement Director

Epidermolysis Bullosa Support Staff

Jeanette Gissen
Programs Director

Epidermolysis Bullosa Support Staff

Jason Kelly
Supporter Led Events Director

Epidermolysis Bullosa Support Staff

Jenna Kubeck
Special Events Director

Epidermolysis Bullosa Support Stuff

Darian McCoy
Programs Manager

Epidermolysis Bullosa Support Staff

Mike Powers
Finance Director

Epidermolysis Bullosa Support Staff

Aigerim Saparova-Smith
Digital Marketing Director

Epidermolysis Bullosa Support Stuff

Lambert Tamin
Bookkeeper

Board of Directors

Ryan Fullmer, Chair, Klamath Falls, OR
J Alec Alexander, Treasurer, Gainesville, GA
Leslie Rader, Secretary, Louisville, KY
Andrew Tavani, Chair Emeritus, Atlanta, GA
Amit Bhattacharyya, Seattle, WA
Angela Christiano, Ph.D., New York, NY
Tiffany Clinton, Los Angeles, CA
William Cornman, Sewickley, PA
Richard Gallagher, Gurnee, IL
John Lee, San Francisco, CA
John Maslowski, Philadelphia, PA
Rob Rayl, Atlanta, GA
Robert Ryan, Ph.D., Isle of Palms, SC
Chris Sloey, Thousand Oaks, CA
Thomas Trimarchi, Ph.D, New York, NY 
James Wetrich, Dallas, TX
Brett Kopelan, M.A., Executive Director

Arlene Pessar, R.N, debra of America Founder
 

Scientific Advisory Board

  • Alan Arbuckle, M.D., Kaiser Permanente
  • Eugene A. Bauer, M.D., Stanford University School of Medicine
  • Susan Bayliss, M.D., Washington University School of Medicine
  • Gary Bellus, M.D., University of Colorado at Denver and Health Sciences Center
  • Anna L Bruckner, M.D., University of Colorado at Denver and Health Sciences Center
  • Angela Christiano, Ph.D. (Co-chair), Columbia University
  • Richard A.F. Clark, M.D., SUNY Stonybrook
  • Jonathan Alden Dyer, M.D., University of Missouri Health Care
  • Ervin Epstein, Jr., M.D., Children's Hospital Oakland Research Institute
  • Nancy B. Esterly, M.D., Medical College of Wisconsin
  • Jo-David Fine, M.D., Vanderbilt University
  • Elaine V. Fuchs, Ph.D., Rockefeller University
  • Sharon Glick, M.D., SUNY Downstate Medical Center
  • Paul Honig, M.D., Children's Hospital of Philadelphia (CHOP)
  • Gerald S. Lazarus, M.D., Johns Hopkins University
  • Moise L. Levy, M.D., Baylor College of Medicine and Texas Children's Hospital
  • Anne W. Lucky, M.D., Cincinnati Children’s Hospital Medical Center
  • Joseph McGuire, M.D., Stanford University School of Medicine
  • Laurence Miller,M.D., Potomac, MD
  • Kimberly D. Morel, M.D., New York-Presbyterian Hospital
  • Amy Paller, M.D., Children's Memorial Hospital, Chicago
  • Francis Palisson, M.D., La Universidad del Desarrollo, Chile
  • Neil S. Prose, M.D., Duke University Medical Center
  • Elena Pope, M.D., Hospital for Sick Children, Toronto
  • Juliette Prendiville, M.D., University of British Columbia
  • Dennis R. Roop, Ph.D., Baylor College of Medicine
  • Lawrence Schachner, M.D., University of Miami School of Medicine
  • Tor Shwayder, M.D., Henry Ford Hospital
  • Daniel Siegel, M.D., Dermatologic Surgery Institute & President, American Academy of Dermatology
  • Mary K. Spraker, M.D., Emory University Clinic of Woodruff Medical Center
  • Madeline Weiner, RN, Chapel Hill, NC
  • Timothy Wright, D.D.S., University of North Carolina at Chapel Hill