Brett Kopelan – Welcome & Opening Remarks

Dr. John E. Wagner – Stem Cell Transplantation for Severe Epidermolysis Bullosa

Dr. Angela M. Christiano – Update on Genetics and Stem Cell Therapies

Dr. Angela M. Christiano, Dr. Sharon Glick, & Dr. Amy Paller – DNA Q&A

Dr. Jakub Tolar – Personalized Induced Pluripotent Stem Cells  for Optimizing EB Treatment 

Dr. Eric Wittkugel – Anesthesia for Your Child with Epidermolysis Bullosa

Panel – Physical and Occupational Therapy

Dr. Michael Farrell – Common Gastrointestinal Problems in Patients with EB

Dr. J. Timothy Wright – Oral Health and Epidermolysis Bullosa

Dr. Mei Chen – Protein Replacement Therapy for Dystrophic Epidermolysis Bullosa

Dr. Ravindhra Elluru – Involvement of the Airway in Patients with EB

Dr. Alfred Lane – Cell Therapy for Epidermolysis Bullosa

Dr. Arturo Kantor – Ocular Surface Rehabilitation in Dystrophic EB

Kaycie Artus & Danielle Malchano – Is Camp For You?

Dr. Amy Paller – What Are The Odds? Genetics Counseling for EB

Dr. Sharon Glick – Prenatal Diagnosis of Epidermolysis Bullosa

Dr. Peter J. Stern – Surgical Management of Epidermolysis Bullosa

Dr. Anna Bruckner – Medical Complications of EB Worth Knowing About: Anemia and Low Bone Mass

Dr. Anne Lucky – Interdisciplinary EB Care

Dr. John Saroyan & Dr. Traci Stein – Medical and Integrative Approaches to the Management of Pain and Itch in EB

Dr. Lynne D. Hubbard – Nutritional Challenges in EB: People with EB and Clinicians Working Together

Dr. Mark P. Popenhagen – A Family’s Guide to Coping with Chronic Illness: What Works and What Doesn’t

Dr. Mark de Souza – Development of Systemic Protein Replacement Therapy for DEB

Dr. Elena Pope – A Consensus Approach to Wound Care

Dr. Richard G. Azizkhan – Management of Esophageal Strictures in EB Patients

Michelle Graham – Insurance Advocacy