Be Part of the Cure this Holiday Season

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MESSAGE FROM THE EXECUTIVE DIRECTOR

If I was to tell you that in the last 12 months, DebRA of America, in partnership with DebRA International, allocated more than $4 million for research to treat and cure Epidermolysis Bullosa, would that give you some hope for those that suffer from “the worst disease you’ve never heard of”? This holiday season you can help us provide more hope than ever before possible.

At 2012 PCC
 
  • IMAGINE taking a single skin cell from a person with EB, fixing the error on the gene that causes EB, making a lot of new healthy cells and putting those new cells back into the same person, potentially curing the disease.
  • IMAGINE making EB a manageable disorder by having monthly infusions of the missing protein through a simple IV.
  • IMAGINE growing healthy new skin from a gene-corrected cell and grafting it onto wounds that never heal.

No longer are these initiatives the realm of imagination. These are only three of the projects funded in the last 12 months. In October, DebRA of America awarded Jakub Tolar, MD, PhD from the University of Minnesota, $200,000 for his work in gene therapy. DebRA of America also provided funding to Kenneth Goldschneider, MD, at Cincinnati Children’s Hospital to lead the development of pain management guidelines, and we support a fellowship program for EB research through the Dermatology Foundation. These grants that will lead to a cure and better treatment options are only possible with your continued support.

Brett Kopelan (DebRA's Executive Director) presenting a check for $200,000 to Dr. Jakub TolarWhether you supported one of our DebRA Local Events, gave in honor or memory of someone, made a donation to help the cause, or are new to DebRA of America, I am asking you to please contribute this holiday season. Help us end the suffering EB inflicts daily.

 

Be part of the cure. Your support will directly impact the lives of thousands.

Happy Holidays from my family to yours,

Brett Kopelan signature

Brett Kopelan
Executive Director and Father to Rafaella, a 5-year-old girl with Recessive Dystrophic EB.

 

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