Welcome to the Dystrophic Epidermolysis Bullosa Research Association of America

This Web site is your entry point to the only national non-profit organization dedicated to both promoting research to find new treatments and a cure for Epidermolysis Bullosa and providing information and support for people with EB and their families. Click here to learn more...

Doctors Find Promising Treatment for EB

June 3rd, 2008 - We are delighted that investigators at the University of Minnesota, in collaboration with renowned EB researchers Drs. Angela Christiano and Jouni Uitto, are reporting promising progress toward treatment of Recessive Dystrophic Epidermolysis Bullosa (RDEB). We are proud to have been a part of the pre-clinical research leading up to this study, and will be sharing results with the EB community of physicians, families, and loyal supporters world-wide. Read press release »

The Jackson Gabriel Silver Dystrophic Epidermolysis Bullosa Career Development Award

DebRA is excited to announce its affiliation with the first DEB Career Development Award dedicated to finding a treatment and cure for DEB.

Please click here to learn more about the award and to contribute to the Jackson Gabriel Silver Fund which supports this and other EB research, as well as EB patient care initiatives.

Funding provided by a generous gift from the Grossmann/Silver Family.

Current Research Trials

EB Wound Healing Drug Study Underway
JEB and Dystrophic EB (Epidermolysis Bullosa) Patients Being Recruited. More »
RegeneRx is pleased to announce the addition of another study site. Dr. Eichenfield of Rady Children's Hospital in San Diego is now recruiting study patients. More »

RDEB Gene Transfer Trial Screening Open
Stanford University in California is currently looking for patients to participate in a preliminary screening. More »

DebRA Welcomes New Executive Director

Mary Sprague joined DebRA of America as Executive Director on May 12, 2008.

10th Annual Mats Wilander Celebrity Tennis & Golf Classic

Mark Your Calendars for the 10th Annual Mats Wilander Celebrity Tennis & Golf Classic.

Monday, October 20, 2008.

For more information call 212-868-1573 or click here.

Photo - Mats Wilander with Son Erik

Patient Care Conference 2008

The free PCC conference was held in Denver Colorado on June 19-22, 2008.

Click here for details »

Shop The EB Awareness Store
Check out our clothing, hats and bags and more

EB Bears Now on Sale!
Just in time for Summer.

Did You Know?

DebRA’s
· Wound Care Clearinghouse collects donated wound care supplies and distributes them free to Epidermolysis Bullosa patients in need.
· Family Crisis Fund provides emergency assistance
· Eric Lopez Fund offers an opportunity for people with Epidermolysis Bullosa to achieve a higher level of independence and/or improve the activities of daily living

Learn more about support for patients and families »