Epidermolysis Bullosa (EB) is painful rare debilitating genetic isolating pervasive agonizing expensive complex

Epidermolysis Bullosa (EB)—"The Worst Disease You've Never Heard Of" —is a rare connective tissue disorder with many genetic and symptomatic variations. All forms share the prominent symptom of extremely fragile skin that blisters and tears with any friction. Learn more

Leading nonprofit supporting people living with Epidermolysis Bullosa (EB).

debra of America is a national nonprofit organization dedicated to improving the lives of those impacted by Epidermolysis Bullosa (EB). We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB.

$1.5 Million

The average dollar amount spent each year on direct-to-patient programs and services.

U.S. FDA-Approved Treatments

debra of America's work has led to the historic U.S. FDA approval of 3 treatments for Epidermolysis Bullosa (EB) in 3 years.

Our Programs & Services

Wound Care Distribution
Support for Epidermolysis Bullosa

Wound Care Distribution Program

debra of America distributes wound care supplies, free of charge, to individuals and families with Epidermolysis Bullosa (EB) in the United States. Supplies include bandages, dressings, ointments, and more. 

Learn more

Get Involved

Support for Epidermolysis Bullosa Attend an Event

Have a good time for a great cause! Check out our upcoming events—both intimate and large—that take place all throughout the year and across the country. 

Learn More
Support for Epidermolysis Bullosa Donate

A gift from you directly impacts all people living with Epidermolysis Bullosa (EB), by providing them with crucial programs and services and funding the most innovative research directed at symptom relief and a cure.

Learn More
Support for Epidermolysis Bullosa Fundraise

Fuel our mission and support the EB Community with our easy-to-use DIY Online Fundraisers! Set up your personalized, online fundraising page today to get started.

Learn More

Current Clinical Trials