Epidermolysis Bullosa (EB) is painful rare debilitating genetic isolating pervasive agonizing expensive complex
Epidermolysis Bullosa (EB)—"The Worst Disease You've Never Heard Of" —is a rare connective tissue disorder with many genetic and symptomatic variations. All forms share the prominent symptom of extremely fragile skin that blisters and tears with any friction. Learn more
Leading nonprofit supporting people living with Epidermolysis Bullosa (EB).
debra of America is a national nonprofit organization dedicated to improving the lives of those impacted by Epidermolysis Bullosa (EB). We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB.
Our Programs & Services

Wound Care Distribution Program
debra of America distributes wound care supplies, free of charge, to individuals and families with Epidermolysis Bullosa (EB) in the United States. Supplies include bandages, dressings, ointments, and more.